Our Stories: Sharing personal experiences for others to see.

My journey just happened to me.  I could not control it.  My Tourette's journey started when I was in year three. At first we thought my tics were just habits so Mum and Dad told me to stop. However, I could not stop. My face was out of control and there were days where I could not drink or eat.  Mum had to feed me.  Mum, understandably, was so worried about me she took me to the doctor's.  The doctor referred me to the Children's Center to talk to a specialist, (who I still see now and I really like). This was when my journey started with medicine.  My mum tells me that it worked like magic, and my tics stopped.  I have very little memory of this time.  It is all a daze to me.   

 

My year four was not very bad, but when I transitioned into year five – to middle school, my tics started up again from the stress.  My medication journey reflected my growth.  As I grew, my medication grew as well. By this I mean I had to take more tablets per day. Medication became my friend. It rode the journey with me.  

 

I started to get more fidgety and choosy about my clothes and shoes. This was not just down to teenage 'fuss'. It was mostly from stress of changing schools. 

I had extra help with the move into year five, however I did not go into TLC (E for E in middle school). Whilst I was at school I would 'hold in' my tics as much as possible, this effort of mine was really difficult to do and  also very exhausting for me. 

 

 So, when I arrived home all of my tics would 'explode' out of my mind. The whole days collection was similar to a volcano erupting! 

 

In year six I joined the school choir. This brought me to my love of singing. I also started piano lessons which helped me to relax and I also started up Guides and Brownies again.  

 

In year seven and eight my mood and symptoms became worse. This is the age when Tourette's peaks. I often had to exit the class and leave school earlier than others, because I could no longer control my tics. 

However, in year eight I became house captain and a sports leader. Sports leader is where you help younger students from different schools to help with their sporting skills.  

 

The transition into year nine was hard, even though I had help from E for E. This is when the voices in my head started. I also began new medication for my voices and tics. This medication has helped my tics more than my voices. 

 

In conclusion, this has been my journey living with Tourette's so far. I have to say though it does have its perks.  

 

On one occasion whilst ticking rather badly I grabbed an egg out of the fridge, walked to the living room continuously ticking and I had a sudden urge to slap the egg on my brothers head and the next moment the egg was on his scalp. He was not very impressed but I did not get in trouble as It was my tics fault! I have to admit though, we do smile about it now.

By E.P age 14

 Tictock Therapy

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